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Prospective Data Collection on Patients with Coagulation Factors Deficiency (PRO-RBDD)

Catherine McGuinn, M.D.

PRO-RBDD is an international collaborating network that has developed a web database designed to prospectively collect clinical and laboratory data of patients with coagulation factor deficiencies in order to evaluate prevalence, bleeding frequency and management, as well as consumption of treatment products and related complications. Current studies are analyzing fibrinogen and factor XIII deficiencies.

IRB: 1308014241

Contact Ilene Goldberg for more information about this study

Weill Cornell Medicine Comprehensive Hemophilia Treatment Center 525 East 68th Street
Payson 695
New York, NY 10065 Phone: (212) 746-3421 Fax: (212) 746-8609