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My Life Our Future: A Hemophilia Genotyping Initiative Data and Sample Research Repository

Catherine McGuinn, M.D.

My Life, Our Future (MLOF) is a nationwide program created to provide genetic testing at no cost to patients with Hemophilia A and Hemophilia B and build a data and blood sample repository, which researchers will be able to use to better understand hemophilia A and B, and other medical conditions. The project is a partnership between ATHN, Bloodworks Northwest, the National Hemophilia Foundation, and Bioverativ (formerly Biogen Hemophilia).

IRB: 1311014564

Contact Ilene Goldberg for more information about this study

Weill Cornell Medicine Comprehensive Hemophilia Treatment Center 525 East 68th Street
Payson 695
New York, NY 10065 Phone: (212) 746-3421 Fax: (212) 746-8609