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Disclosure in the Hemophilia Population: Factors influencing Disclosure and the Effect on Interpersonal Relationships

Catherine McGuinn, M.D.

The goal of this study is to understand how disclosure of a chronic illness affects the interpersonal relationships of individuals with hemophilia and other congenital bleeding disorders, as well as which factors influence their decision to disclose. Adults 18 and over with a congenital bleeding disorder will be asked to complete an online, de-identified questionnaire designed to answer these questions.

Contact Ilene Goldberg for more information about this study

Weill Cornell Medicine Comprehensive Hemophilia Treatment Center 525 East 68th Street
Payson 695
New York, NY 10065 Phone: (212) 746-3421 Fax: (212) 746-8609